Native mother making coronary heart ornaments to help fellow ‘coronary heart mothers’
FLOYD COUNTY, Ky. (WYMT) – A Floyd County mother, Lyndsai Frasure gives hospital back to those who saved her son’s life and those who supported her.
After years of struggling to have a baby, Frasure was overjoyed to find that she was pregnant through IVF after conception.
“My husband and I were just delighted to see him and couldn’t wait to see what the future would mean for him,” said Frasure.
That excitement was quick to worry. When she was 23 weeks pregnant, she learned that her little boy Huck had a congenital heart defect called tricuspid atresia with a hypoplastic right ventricle. This means that the right side of his heart is underdeveloped and has difficulty pumping blood around his body.
After speaking to doctors in Lexington, they told Frasure and her husband that they had two options. One was palliative care and the other tackled the defect with multiple operations.
“Palliative care is not an option. We will fight that. When we’ve been blessed with this child, we know there is a plan and a purpose for it, so we took the course of three surgical options for him, ”Frasure said.
Huck was born with other health problems too, and was only hours old when he had his first surgery. In his two years of life he had two cardiac catheter examinations, one open heart operation at the age of five months and a total of 10 operations.
“He’s been a pretty busy little guy for the past two years, but luckily we’re in a really quiet place right now. We’re waiting for his next open heart surgery, which hopefully will take place in about a year, ”said Frasure.
Frasure says that with the support of other families at Cincinnati Children’s Hospital and the support groups of the Heart Family, she made it through the difficult journey.
“People who aren’t in this situation don’t always get it, so it’s nice to have people who understand,” said Frasure.
While Frasure and her husband waited for Huck to come out of his open heart surgery, they received a bag of snacks and drinks from a family whose daughter had passed away.
“I told my husband that once things settled down I would like to find a way to give something back,” said Frasure.
Now she is giving something back to other “heart families” by making ornaments out of zippers that are shaped like a heart. They are half blue and half red and represent the colors for awareness of congenital heart defects.
“Your baby, with his perfect little skin with such a big scar, was very difficult to see, but it was also a lovely memory of life and we know every heartbeat is a blessing,” said Frasure.
She gives them to other mothers to help them on their journey and to remind them of their wonder babies.
“Mothers reach me and say, ‘I just wanted to tell you I opened this and I cried a little bit when I stood in the kitchen, thank you for that’ and that’s really what we want is love and support to show and encourage others, ”she said.
Frasure has shipped more than 60 ornaments to heart families in the past few weeks.
When the pandemic is over, she plans to donate it to Cincinnati Children’s Hospital to comfort families going through the same journey.
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